Hi everyone. You may have noticed I missed yesterday’s post. That was mostly because of the eclipse here in the US. I was excited for that and really wasn’t paying attention to anything else. I was also dealing with another issue, one mentioned in the YouTube video I linked above. It’s my second vlog episode, and one where I actually break down. I don’t do that often in anything public, least of all something that’s on the internet. But I felt it was important to get out my message, and that’s part of it.
What’s so important that I had to say it when I was so emotional? I went to the ER for a screaming headache and the fact that my legs felt like someone poured gasoline (petrol for those of you not in the US) on them and lit them on fire. They were so much on fire I wanted to scream. They still are. The Nurse Practitioner treated the migraine but really didn’t say much about my legs other than that the pain was most likely a “form of neuropathy.” When I talked to my primary care doctor, she agreed with the assessment. When I talked to my vascular surgeon he agreed with the assessment, even though neuropathy typically sticks to the feet and hands and is more common to someone with diabetes.
No, I don’t have diabetes. I don’t even have pre-diabetes. My A1C number (that’s what they look at to assess your likelihood for diabetes) is at the low end of what’s considered normal. It’s not too low though, so there’s nothing to be worried about. But now I have a problem – what exactly is wrong with my legs, and is it permanent? I hope it’s not, but if it is, I’ll have mobility issues for the rest of my life. This is something that I don’t look forward to, since I have more than enough health issues that are going to last me for the rest of my life. I don’t need one more.
I’ve set another appointment with my primary care doctor to see what she says, what tests I need to take to find out what this is, and how I can treat it – if there is a treatment. I’ve had to make some adjustments to my life, though at first I thought I’d lost the ability to do one of the things that makes me really happy.
I thought I’d lost the ability to cook and bake. Both of those require me to stand on my feet, and my legs just couldn’t take it. It was suggested I could sit in the kitchen and direct people, but that wasn’t what I wanted. I wanted to have my hands in everything. I wanted to chop, stir, knead bread, mix pancakes. I wanted to do everything when it came to the cooking.
So, thanks to my wonderful friend Deborah urging me not to give up on something I love so much, I came up with the idea to turn the table that serves as the “island” in our kitchen into my work space. With some help, I cleared it off and got rid of most of the stuff under it. I tucked a stool underneath for me to sit on and voila, instant work area. It got its first test yesterday morning, and it worked fairly well. I still had to do a lot of standing and walking, but that was mostly because my original breakfast plan got scrapped due to not finding a couple ingredients. But if I plan carefully, I shouldn’t have to worry about standing at all, except to pull things out of the oven and to drain things in the sink, like pasta. This makes me very happy.
What I’ve learned through all of this is humans are very adaptable creatures. We constantly adapt our surroundings to suit us. And if that doesn’t work, we adapt to that as well. We know we can do things that will make our lives easier, or at the very least more livable. We are remarkably resilient and can do a lot of stuff.
So when life throws a curve ball in your direction, don’t let it stop you. Roll with it and adapt to the situation. Figure out how to deal with it and move forward. Go ahead and have a good cry if you need to. An emotional breakdown is okay. I’ve had a few since this all started. But the next step is to keep moving beyond them. Keep moving forward. That’s the only way to survive.